Rare Genetic Conditions Working Group Members

Peter Byers, M.D. (Chair)
University of Washington School of Medicine   
Seattle, WA   
Janine Lewis, M.S., C.G.C.
ICF International

Rockville, MD
Joann Bodurtha, M.D., M.P.H.
Johns Hopkins
McKusick-Nathans Institute of Genetic Medicine
Baltimore, MD
Cynthia Powell, M.D., M.S.
University of North Carolina School of Medicine
Chapel Hill, NC
Philip Giampietro, M.D., Ph.D.
University of Wisconsin School of Medicine and Public Health   
Madison, WI
Sarah Soden, M.D.
Children's Mercy Hospital
Kansas City, MO
Lisa Heral, R.N., B.A.
Parkview Regional Medical Center
Fort Wayne, IN
Rodolfo Valdez, Ph. D.
Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
Atlanta, GA

Steering Committee Liaison, WK Manager and Supervisor

Sharon Terry, M.A. (SC Liason)                                             
Genetic Alliance    
Washington, DC 
Working Group Manager
Tracey Grant, MS
RTI International  
Research Triangle Park, NC 

Working Group Supervisor

Michael Phillips, MS
RTI International  
Research Triangle Park, NC